About Fragile X Syndrome and our Family
My name is Deborah Parker. My husband, William and I are the proud parents of five children, three of whom have Fragile X Syndrome. When our oldest son was diagnosed with Fragile X over 6 years ago we were devastated and did not know how we were going to get through the next day, the next week, month or year. Now, 6 years later we are stronger and more dedicated than ever to raising awareness and helping find a cure for Fragile X. We are active within the Fragile X community on the local, state and national levels. We helped form the Pennsylvania Fragile X Support Group.
In 1999, we established the non-profit organization The Jacob Foundation, named after our son. In the past 5 years, The Jacob Foundation, which also operates under the name Champions for Children has raised money for the National Fragile X Foundation, UC Davis M.I.N.D. Institute, FRAXA Research Foundation, The Arc, and the Special Olympics. Our fundraisers have included two golf tournaments, a dinner and charity auction and an ongoing magnet and decal sale. To date, we have donated over $54,000.00 to charity.
The Jacob Foundation DBA Champions for Children is a registered 501(c)(3) non profit organization. Our tax identification number is 232986935.
You have most likely made it to this web site because you are touched by Fragile X in some way. If by chance you do not know about Fragile X, I ask that you learn more by visiting The National Fragile X Foundation's web site at www.FragileX.org
About our recipients
We are donating 100% of the profits to benefit research into a cure for Fragile X. Half will go to the National Fragile X Foundation. The other half will be sent to Dr. Paul Hagerman at the UC Davis M.I.N.D. Institute.
